Bill Summary

HB 497 Neurofibromatosis Research Grants (2026 Session)
Neurofibromatosis Research Grants: Creates Neurofibromatosis Disease Grant Program within DOH; provides purpose program; requires, subject to appropriation, program to award certain grants; provides requirements for grant applications; requires Rare Disease Advisory Council & peer review panels to establish & follow specified guidelines; prohibits members of council & panels from participating in certain discussions & decisions; authorizes certain appropriation funds to be carried forward. Effective Date: July 1, 2026
11/19/25
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Filed
11/24/25
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Referred to Health Professions & Programs Subcommittee; Health Care Budget Subcommittee; Health & Human Services Committee
11/24/25
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Now in Health Professions & Programs Subcommittee
02/09/26
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On Committee agenda - Health Professions & Programs Subcommittee, 02/11/26, 9:30 am, 102 H
02/11/26
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Favorable with CS by Health Professions & Programs Subcommittee; 14 Yeas, 0 Nays
02/11/26
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Committee Substitute Text (C1) Filed
02/12/26
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Reference to Health Care Budget Subcommittee removed; Remaining reference: Health & Human Services Committee
02/12/26
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Now in Health & Human Services Committee
0497
Filed on 11/19/25
PDF
Amendment 521749 DE
Filed on 02/10/26
Adopted
0497C1
Filed on 02/11/26
PDF
No amendments to this bill text filed.
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