Bill Summary

HB 1381 Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases (2026 Session)
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Sponsors
by Franklin II
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Summary
Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases: Authorizes licensed physicians to prescribe & eligible facilities to administer experimental treatments; requires approval of specified platform or master protocol by institutional review board; requires DOH to establish & maintain patient registry; requires DOH to annually publish specified report; encourages health insurers & health maintenance organizations to provide specified insurance coverage for experimental treatments; authorizes licensed physicians & eligible facilities to receive reimbursement for experimental treatments; requires manufacturers of experimental treatments to provide for specified temporary price concession; requires DOH to adopt by rule certain procedures for licensing of experimental treatment centers. Effective Date: upon becoming a law
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committees of reference
» H Health Professions & Programs Subcommittee
   H Health Care Budget Subcommittee
   H Health & Human Services Committee
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Actions
01/09/26
HOUSE 
Filed
01/15/26
HOUSE 
Referred to Health Professions & Programs Subcommittee; Health Care Budget Subcommittee; Health & Human Services Committee
01/15/26
HOUSE 
Now in Health Professions & Programs Subcommittee
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bill text & filed amendments
1381
Filed on 01/09/26
PDF
No amendments to this bill text filed.
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Statute Citations
499.0295
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